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Susan Geeves Email
28/10/09

Are you parent carer or professional? parent

How did you find us? I have always known about the PWS Assoc. This was a link.

County or area Derbyshire

Comments:
My daughter who is an adult of 36 lives fairly independantly
in a bungalow near us.  She lives with a partner who also
has learning difficulties, along with other disabilities.  
She has always has PWS but we have mostly managed this
ourselves.
The eating we know will always be a huge problem, which
quite honestly I sometimes give up on. But, and this is a BIG
but I cannot manage her behaviour towards shopping.  She
constantly buys, for instance, socks by the dozen or more,
cookery books, shampoos, knickers, etc., it has become
very difficult for me, when we are shopping.  She buys things she already has and causes a scene if I say No, I must stress this has only become a problem for the last 12 months, it is getting worse. Yesterday for instance we were at Dunelm Mill, she
picked up yet more bedding, ( she has loads ) pillows, towels
all the time I have to try and stop her from buying things and just get what we come in for.  We have had to stop her going to the Supermarket because of this behaviour.  I now try and
get her to food shop daily, this does cut out impulse buying, which we are all capable of and keeps some things on an even keel.   I have thought of hypnotherapy maybe or some form
of counselling, perhaps you can help me with some information.
Yours hopefully

Susan Geeves


George Cureton Email
23/10/09

Are you parent carer or professional? parent

How did you find us? On Line

County or area Merseyside

Comments:
My son moved into supported living eighteen months ago sharing with a young man with mental health broblems, my so n who canot talk and is doubly incontinent and can be a bit noisy, as it is his only way to express himself,and is not aware of his actions, 

he has been verbaly abused by tshis other service user ,has had his food taken ,and plays music into the early hours of the morning and leaves the comunial area in a mess ,leaving clothes shoes all around the place, after eating his meal leaves plates cups glasses on the table.

I and my wife visited him last sunday with our other disabled son who was in the same room as the other service user and he screemed abuse at my other son ,i did get it touch with our social worker who told us to phone up to see if he was out before we visited, we dont want a quick fix as allways seems the norm.

Do mental health and learning disabilitys mix well ,hope to hear from members on this issue.  

Sorry, this is a private entry which is only viewable by the owner.

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Deb Email
26/09/09

Are you parent carer or professional? carer

How did you find us? member

County or area West Midlands

Comments:

Icant remember if it was someone in this network who was looking for a double water proof matress well i found them while looking for a single one for my daughter furniture 24/7 do them  hope this helps some one somewhere x


Birte Langfeldt Email
16/09/09

Are you parent carer or professional? parentcarer

How did you find us? informed by Sol jorgensen

County or area south glamorgan

Comments:
I am very glad to have found somewhere to seek  information on behavioral issues, as I have hit the wall at the moment and refused to have my 19 year old daughter home as I cannot manage her on my own 24 hours a day, as much as I love her.
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