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kenneth canfor Email
11/25/09 at 03:36 PM

Comments:
I am a reflexologist and reiki master and was treating an autistic boy at a house  when I encounted a 22 year old M D sufferer. Her hands locked in a grip for 85-90% of the time, all the time so she could not work. I treated her for 20 mins, and  I felt very ill during the session. When I saw her 3 days later, her hands  had not locked at all since the session. 4 weeks later her  hands could still open and close. Enquirieys http://www.eastcoastreflexologyschool.co.uk or kenneth canfor


James Bell Email
11/24/09 at 12:57 PM

Comments:

I have not been diagnosed yet for the reason of the possibility of being denied health care. My Mother had it, her siblings and all my cousins. My Mother died at 62 from complications that are created. I have most all syptoms and are worse adn they started earlier than my Mother's did; early teens. None of my cousins have been able to have childeren because of the disease. I am now 41 and now looking to go on disability.


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Darren Email
08/25/09 at 04:48 PM

Comments:

I was diagnosed around age 20 but looking back I had symptoms since 13 or 14. My biggest concerns now is my lack of romantic relationships and how long I will continue to be able to live independently. 


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08/18/09 at 01:50 AM

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anon 
07/02/09 at 03:28 AM

Comments:
To worried mom

I was diagnosed after the birth of my first child who is also badly affected....Encourage children to be tested as this can affect future generations (their children)......
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