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heather 
01/07/11 at 03:16 PM

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my brother was recently diagnosed wih myotonic. i wish everyone good new year and love


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01/04/11 at 03:28 AM

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martha alston Email
04/29/10 at 06:23 PM

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hi i am 48 years old was said to have this when i wa 35 realy dealing with be so tired but i cant sleep at night i have 3sons which were tested they dont have this thank God i have to perfect grandchildren and onr more on the way i never had test for the repeats i still walk with a cain i do have a wheelchair i use if all plan to be out awile just got the ramp for my husband truck i having kidney stones all the time i hear theres no connection but they dont no enough about this desase its hard as my prgression leaves me weak but you no we all hav to deal thanks to my loving husband and faith in God ill have some good days some day


kenneth canfor Email
11/25/09 at 03:36 PM

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I am a reflexologist and reiki master and was treating an autistic boy at a house  when I encounted a 22 year old M D sufferer. Her hands locked in a grip for 85-90% of the time, all the time so she could not work. I treated her for 20 mins, and  I felt very ill during the session. When I saw her 3 days later, her hands  had not locked at all since the session. 4 weeks later her  hands could still open and close. Enquirieys http://www.eastcoastreflexologyschool.co.uk or kenneth canfor


James Bell Email
11/24/09 at 12:57 PM

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I have not been diagnosed yet for the reason of the possibility of being denied health care. My Mother had it, her siblings and all my cousins. My Mother died at 62 from complications that are created. I have most all syptoms and are worse adn they started earlier than my Mother's did; early teens. None of my cousins have been able to have childeren because of the disease. I am now 41 and now looking to go on disability.


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